Home News Mother seeks help for deaf-mute son’s rare disease

Mother seeks help for deaf-mute son’s rare disease

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Tameika Frazer from Grange Hill, Westmoreland, is a mother desperate to provide some relief for her firstborn son, 17-year-old Lorenzo Smith.

 

Three years ago, Smith, who was born mute and hearing impaired, was diagnosed with Adult Hirschsprung’s, a condition that affects the large intestine (colon) and causes problems with passing stool. “It causes his tummy to be swollen. Sometime his tummy becomes so stiff and you cannot touch it, because he’ll be in pain,” she said.

Frazer said a month ago, she realised the swelling had spread.

“I noticed the swelling of his tummy, and also to his feet and face, and I took him to the hospital where they did an X-ray and a blood test. The X-ray showed that there’s faeces in his tummy,” she said.

Lorenzo was placed on the surgical clinic at the Savanna-la-Mar Hospital, where doctors will assess whether he needs to do surgery.

But Frazer said she intended to meet with doctors today to see if surgery could be avoided, and explore what other treatment is possible.

“He has done so many surgeries before, and he’s such a skinny child, I don’t know if I’d be comfortable with him doing another surgery,” she said.

In the meantime, Frazer said she still has to take him to the hospital for regular check-ups. But as a single mother of six, and a bartender, she said the expenses are out of her reach, so she’s seeking help.

“Sometimes he doesn’t get to go to his appointment and so on. I can take him to the hospital, and the fare is not expensive, but it’s the prescription. The last one cost about $4,000, and I have to repeat it,” she said.

Frazer also said that her son is not covered by the National Health Fund. She has started a GoFundMe page with the target showing J$50,000, the amount she believes can help pay for his medication for now.

Perons willing to assist Frazer, can contact her at 876-562-9588 or donate to her GoFundMe page https://www.gofundme.com/lorenzo039s-medical-health-conditions-fundraising